Overarching insight from physicians and nurses from face-to-face interviews.
1. The advocate must be responsible and ask the right questions if we want good information. That is difficult for civilians because so many things sabotage our ability to communicate.
2. The White Coats think that, in general, advocates can and should do much better, be more aware and better informed than we are. They note that unprepared advocates can be disruptive and cause doctors to spend valuable time trying to communicate with us.
3. Many advocates have unrealistic expectations of medicine, expecting perfection. The reality is that there are many gray areas in medicine, and we’ve got to accept that.